This article is about, Peng Maolin, mother of a hemophiliac son and founder of Chongqing’s first support program for hemophiliacs, the “Hemophilia Association of Chongqing” created in 2006. The program then became a registered organization and started providing support for hemophilia stricken families. Peng used her mastery of the Chinese art of paper-cutting to start selling items to raise funds for the organization. After a while, the paper cutting business bloomed helping the organization develop even further.
In 2008, Peng managed to present her report on hemophilia to delegates and committee members during Chongqing’s “two meetings” [the Chongqing People’s Congress and the Chongqing Committee of the Chinese People’s Political Consultative Conference]. Partly as a result of this advocacy effort, hempohilia was added to the Chongqing municipality’s list of rare diseases, therefore providing hemophilia sufferers with better health insurance and benefits.
Peng says that her dream is to see all hemophiliacs receive adequate medical treatment and medicines so that they can leave a normal life.
