Chinese Organization for Wilson Disease (COWD)

Promote lasting solutions to Wilson disease in China!

The Chinese Organization for Wilson Disease (COWD) is a non-profit organization founded by Wilson disease patients, their family members and volunteers. It is currently the only organization focusing on the Wilson disease.

Wilson-China is the spiritual home for Wilson disease patients and their families to share their experiences in fighting Wilson disease. It aims to promote increased assistance and treatment for patients of Wilson disease, to collectively push for the advancement of Wilson disease policies, to increase the living standards of Wilson disease patients and to ultimately advocate equal opportunities for patients.

Goals

Build up a platform for Wilson disease awareness, medical and mental assistance. Unite patient groups while promoting equal assistance and prompt policy advancement.

Major Projects

• Dinner with the Wilson Disease Patients
• Mothers of Wilson Patients sing “River Manifesto”
• Editing and Publishing of Wilson Disease Hymn
• “Hike a Mountain, Build up a Copper Doll” Outdoor Activity
• Wilson Patients Parenting Class

Major Achievements

• Increased recognition of Wilson Disease in China
• Publishing of the first Wilson disease guidebook in China

Major Funders

China-Dolls, Shanghai Clover, Tencent Foundation

Major Partners

China Charities Aid Foundation for Children (CCAFC), China Social Welfare Foundation (CSWEF), Children’s Hope Foundation, Tencent Foundation

Distinctions

We specialize in publicity, advocacy, psychological and medical assistance, multilateral cooperation; popularization of rare diseases in addition to conducting mental assistance and economic assistance.